new83

Kathryn Harney caresses her 27 month old son Nathan at their home in Downingtown, PA. Nathan has Tay Sachs, a disease ordinarily associated with Ashkenazic Jews. Parents of Irish ancestry have a 1 in 50 chance of conceiving a child with the disease. Nathan requires near constant care as his condition has deteriorated over the past year. "We've never gotten out of the infant phase," Aaron says. Nathan now needs 24 hour care as he's unable to turn himself over or move on his own and must be turned every two hours at night. Scott Lewis For The Wall Street Journal TAYSACHS